We don’t talk about Endometriosis enough. It’s such an unrecognised disease as symptoms can range so dramatically. My most noticeable symptoms were extreme pain, 1-3 days a month and increasingly intensified bleeding over time.
However, I didn’t ask for help until one day I had extreme dyspareunia.
It actually rendered me unable to stand and I had never been in that type of pain before. So in the end that was what convinced me to speak to the doctor and tell him I had suspicions I had endometriosis. Initially my GP was skeptical, but he is a wonderful man and brilliant doctor and he did listen to me and organise a referral to the gynaecologist.
I had met Kelvin before, he’d already done one surgery for a cyst we suspected was contributing to my kidney failure (it wasn’t) so he was aware of my complicated history and his feedback was my symptoms were suggestive of endometriosis.
So we booked in surgery.
It was a fairly quick turn around, my anaesthetist works with Kelvin once a month or so and when I tell you no other human will inject anaesthetic in me except for Martin, I mean it. He is South African and just incredible. One of the key players in my medical story and there are very few people I trust more than him with my life.
My initial surgery was not complicated, however it was confirmed that not only did I have endometriosis. But my left ovary was fused to the side of my abdomen and it was across both my ovaries and through my abdominal wall. None throughout any of my fertility organs though which was good news as it meant that it was likely not going to effect my chances of having a mini me.
The pain of my first period after the surgery was WILD. I couldn’t bring myself to even think clearly for days, it was so intense and so persistent it was almost unbelievable that a human being could be in that much pain and not be dying.
However, after that it all went away.
There was no pain, no symptoms, just simple existence. Peacefully.
Ladies, we need to talk about this openly. We need to be able to ask each other and share our personal stories to equip other women with knowledge around these topics. I want to hear your stories. Please comment or DM me on instagram which you can find at the bottom of this page.
Let’s make it less uncomfortable to ask for help but sharing the discomfort we’ve been through.
I am so ready to hear about other peoples stories.
Sarah x
